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New Normal

This tag is associated with 39 posts

Rare Disease and Train Wrecks

Let’s talk about having a rare disease and people that are train wrecks.  Heck, even I have been a train wreck during this new life.  So, everything I am typing does, and did, pertain to me. When we sit on our front porch and watch a train go by, we first hear the warning signal.  … Continue reading

Thinking about Surgery?

Something I have a feeling might be needed is a re-posting of several old posts.  Since they are a few years old and I haven’t re-read them lately maybe I will take the time to look for corrections and to add anything that might be interesting.  I will do them as links.  If you are … Continue reading

10/06/2019 Update

I hope my readers understand that this blog is not a daily, or even weekly, blog where I just put something out into the web world to be read.  As life has become a normal routine of living with my new normal, then there are times that I feel there is no need to put … Continue reading

September is Chronic Pain Month for all With Tarlov Cysts

September is Chronic Pain Awareness month.  So, I am going to give you a bit of reality about life with pain.  Now this post is not to make you feel sorry for me, it is just a reality check for those who do not have to deal with the issue.  To let you know, there … Continue reading

Tarlov Cyst Experiment? An Open Letter to Other Rare Patients

Tarlov Cyst Experiment?   An Open Letter to other Rare Patients 6/4/2019 As I finally am able to sit outside without baking, I realize I have a lot to be thankful for.  First, and it may seem weird, is that the neighbor’s dogs are not barking non-stop.  They are trying to get the tiny one outside … Continue reading

Pain Tolerance Rant

Ok I really have to get something off my chest. My two gripes: When a doctor asks what your level of pain is and you answer.  Then someone will also suggest that you are a terrible person by making the comment that ‘your pain tolerance is low’.  [And isn’t it always said with a snide … Continue reading

06/16/2019 Update

Y’all, Help!  I am so nervous I am giving myself a headache.  We head out, in the morning, for Dallas.  It has been 4 and half years since I have been in that town.  I so know I did not have this much anxiety over my first consult or even surgery.  I had no clue … Continue reading

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