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archives

Recovery

This category contains 19 posts

08/09/2020 Update

New word for today, Hyperalgesia”.   08/09/2020 When a blogger has nothing to do, or cannot do anything useful, she types up a post.  You are thinking that with this new home, maybe I should be doing something to improve it.  You would be right, but…… Since my last post not too much has changed.  Maybe … Continue reading

Rare Disease and Train Wrecks

Let’s talk about having a rare disease and people that are train wrecks.  Heck, even I have been a train wreck during this new life.  So, everything I am typing does, and did, pertain to me. When we sit on our front porch and watch a train go by, we first hear the warning signal.  … Continue reading

Thinking about Surgery?

Something I have a feeling might be needed is a re-posting of several old posts.  Since they are a few years old and I haven’t re-read them lately maybe I will take the time to look for corrections and to add anything that might be interesting.  I will do them as links.  If you are … Continue reading

Tarlov Cyst Experiment? An Open Letter to Other Rare Patients

Tarlov Cyst Experiment?   An Open Letter to other Rare Patients 6/4/2019 As I finally am able to sit outside without baking, I realize I have a lot to be thankful for.  First, and it may seem weird, is that the neighbor’s dogs are not barking non-stop.  They are trying to get the tiny one outside … Continue reading

Thoughts on Four Years and Recovery, Page 2

This is part two of my Four Year Recovery posts.  I repeated the first paragraph as an intro for you.  This one will cover more of my physical arena. I guess, since I skipped a three-year follow-up, I should do one this anniversary.  As you read this post, and the next, might I suggest you … Continue reading

Thoughts on Four Years and Recovery, Page 1

Wow! It has been four years since my Tarlov Cysts surgery!!!! I guess, since I skipped a three-year follow-up, I should do one this anniversary.  As you read this post, and the next, might I suggest you read the pages in the top menu.  There are several pages under the drop-down tags of  ‟Journey,”  ‟Recovery” … Continue reading

#ChronicallyIllAndThankful, Day 29

Day 29 in the #ChronicallyIllAndThankful  series. As I wind down theses posts I need to tell you how thankful I am for finding support groups!  Just having other people who have a bum that gives them fits and being able to ‘talk’ with them about what they have tried helps scatter the loneliness.  They also … Continue reading

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