//
archives

Just My Thoughts

This category contains 80 posts

07/16/21 Update

It has been a while, yes?  So how has this old body been doing?   Humm, do I talk about the daily discomforts with Tarlov Cysts?  Do I talk about the daily struggle with my ligaments wanting to cramp up on me?  Do I talk about my bones hurting?  Or do I choose to talk about … Continue reading

Rare Disease and Train Wrecks

Let’s talk about having a rare disease and people that are train wrecks.  Heck, even I have been a train wreck during this new life.  So, everything I am typing does, and did, pertain to me. When we sit on our front porch and watch a train go by, we first hear the warning signal.  … Continue reading

01/21/2020 Update, Hypocrite

01/21/2020 Well it is official.  I am a hypocrite.  Yep, a pain warrior hypocrite.  If you look at the past few posts then you know that I am hitting the keyboard a little too often.  What does that mean?  It means pain!  It means my body hates me and my mind is yelling thoughts at … Continue reading

Thinking about Surgery?

Something I have a feeling might be needed is a re-posting of several old posts.  Since they are a few years old and I haven’t re-read them lately maybe I will take the time to look for corrections and to add anything that might be interesting.  I will do them as links.  If you are … Continue reading

September is Chronic Pain Month for all With Tarlov Cysts

September is Chronic Pain Awareness month.  So, I am going to give you a bit of reality about life with pain.  Now this post is not to make you feel sorry for me, it is just a reality check for those who do not have to deal with the issue.  To let you know, there … Continue reading

Tarlov Cyst Experiment? An Open Letter to Other Rare Patients

Tarlov Cyst Experiment?   An Open Letter to other Rare Patients 6/4/2019 As I finally am able to sit outside without baking, I realize I have a lot to be thankful for.  First, and it may seem weird, is that the neighbor’s dogs are not barking non-stop.  They are trying to get the tiny one outside … Continue reading

Acting Leads to Running Empty

08/09/2019 I know I have talked about deserving an Oscar for how I try to “act” normal.  If you see me daily, you would know when I just can’t play the “role”.  I have intentionally been silent on the blog for several reasons.  Some are reasons that are not about the Tarlov Cysts Disease so … Continue reading

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 110 other followers